An assessment of information needs and workflows for emergency service providers and caregivers of children with medical complexity

Aubree Honcoop, Russell J. McCulloh, Ellen Kerns, Bethany Lowndes, Tiffany Simon, Natalie McCawley, Ricky Flores, Martina A Clarke

Research output: Contribution to journalArticlepeer-review

1 Scopus citations

Abstract

Background: The goal of Project Austin, an initiative to improve emergency care for rural children who are medically complex (CMC), is to provide an Emergency Information Form (EIF) to their parents/caregivers, to local Emergency Medical Services, and Emergency Departments. EIFs are standard forms recommended by the American Academy of Pediatrics that provide pre-planned rapid response instructions, including medical conditions, medications, and care recommendations, for emergency providers. Our objective is to describe the workflows and perceived utility of the provided emergency information forms (EIFs) in the acute medical management of CMC. Methods: We sampled from two key stakeholder groups in the acute management of CMC: four focus groups with emergency medical providers from rural and urban settings and eight key informant interviews with parents/caregivers enrolled in an emergency medical management program for CMC.

Original languageEnglish (US)
Article number453
JournalBMC Health Services Research
Volume23
Issue number1
DOIs
StatePublished - Dec 2023

Keywords

  • Children with medical complexity
  • Emergency Information Form
  • Needs Assessment

ASJC Scopus subject areas

  • Health Policy

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