TY - JOUR
T1 - An assessment of information needs and workflows for emergency service providers and caregivers of children with medical complexity
AU - Honcoop, Aubree
AU - McCulloh, Russell J.
AU - Kerns, Ellen
AU - Lowndes, Bethany
AU - Simon, Tiffany
AU - McCawley, Natalie
AU - Flores, Ricky
AU - Clarke, Martina A
N1 - Funding Information:
RM, EK, BL, and AH receive support from the Office of the Director of the National Institutes of Health under award UG1OD024953. RM and EK also receive support from the National Institute of Child Health and Human Development under award 1OT2HD108106. The remaining authors did not receive funding. Funded by the National Institutes of Health (NIH). The funding body had no role in the design, analysis, interpretation of data, or writing of this manuscript.
Publisher Copyright:
© 2023, The Author(s).
PY - 2023/12
Y1 - 2023/12
N2 - Background: The goal of Project Austin, an initiative to improve emergency care for rural children who are medically complex (CMC), is to provide an Emergency Information Form (EIF) to their parents/caregivers, to local Emergency Medical Services, and Emergency Departments. EIFs are standard forms recommended by the American Academy of Pediatrics that provide pre-planned rapid response instructions, including medical conditions, medications, and care recommendations, for emergency providers. Our objective is to describe the workflows and perceived utility of the provided emergency information forms (EIFs) in the acute medical management of CMC. Methods: We sampled from two key stakeholder groups in the acute management of CMC: four focus groups with emergency medical providers from rural and urban settings and eight key informant interviews with parents/caregivers enrolled in an emergency medical management program for CMC.
AB - Background: The goal of Project Austin, an initiative to improve emergency care for rural children who are medically complex (CMC), is to provide an Emergency Information Form (EIF) to their parents/caregivers, to local Emergency Medical Services, and Emergency Departments. EIFs are standard forms recommended by the American Academy of Pediatrics that provide pre-planned rapid response instructions, including medical conditions, medications, and care recommendations, for emergency providers. Our objective is to describe the workflows and perceived utility of the provided emergency information forms (EIFs) in the acute medical management of CMC. Methods: We sampled from two key stakeholder groups in the acute management of CMC: four focus groups with emergency medical providers from rural and urban settings and eight key informant interviews with parents/caregivers enrolled in an emergency medical management program for CMC.
KW - Children with medical complexity
KW - Emergency Information Form
KW - Needs Assessment
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U2 - 10.1186/s12913-023-09366-y
DO - 10.1186/s12913-023-09366-y
M3 - Article
C2 - 37158902
AN - SCOPUS:85159729381
SN - 1472-6963
VL - 23
JO - BMC Health Services Research
JF - BMC Health Services Research
IS - 1
M1 - 453
ER -