Attending to Total Pain in Juvenile Huntington Disease: A Case Report Informed by Narrative Review of the Literature

Lindsey M. Kendrick; Denise Hudgell; Amy Hellman; Meaghann S. Weaver

doi:10.1177/0825859719835560

Attending to Total Pain in Juvenile Huntington Disease: A Case Report Informed by Narrative Review of the Literature

Lindsey M. Kendrick, Denise Hudgell, Amy Hellman, Meaghann S. Weaver

Research output: Contribution to journal › Article › peer-review

3 Scopus citations

Abstract

Objectives: To consider the impact of juvenile Huntington disease (JHD) from a biomedical, symptom burden, and total pain palliative care perspective. Methods: This case report was informed by a narrative review of the literature with inclusion of expert opinion from pediatric palliative care, an adult and pediatric neurologist, and a child psychiatrist. Audio-recorded qualitative interview and coauthorship with the pediatric patient’s primary caregiver (his mother). Results: The JHD impacts all domains of child and family function. Significance of Results: Application of the concept of total pain to JHD informs and guides care for this complex, challenging condition.

Original language	English (US)
Pages (from-to)	205-207
Number of pages	3
Journal	Journal of Palliative Care
Volume	34
Issue number	3
DOIs	https://doi.org/10.1177/0825859719835560
State	Published - Jul 1 2019

Keywords

Huntington’s Disease
Juvenile Huntington’s Disease
palliative care
pediatric
total pain

ASJC Scopus subject areas

Medicine(all)

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10.1177/0825859719835560

Cite this

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abstract = "Objectives: To consider the impact of juvenile Huntington disease (JHD) from a biomedical, symptom burden, and total pain palliative care perspective. Methods: This case report was informed by a narrative review of the literature with inclusion of expert opinion from pediatric palliative care, an adult and pediatric neurologist, and a child psychiatrist. Audio-recorded qualitative interview and coauthorship with the pediatric patient{\textquoteright}s primary caregiver (his mother). Results: The JHD impacts all domains of child and family function. Significance of Results: Application of the concept of total pain to JHD informs and guides care for this complex, challenging condition.",

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AU - Weaver, Meaghann S.

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Attending to Total Pain in Juvenile Huntington Disease: A Case Report Informed by Narrative Review of the Literature

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Keywords

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