Attending to Total Pain in Juvenile Huntington Disease: A Case Report Informed by Narrative Review of the Literature

Lindsey M. Kendrick, Denise Hudgell, Amy Hellman, Meaghann S. Weaver

Research output: Contribution to journalArticle

Abstract

Objectives: To consider the impact of juvenile Huntington disease (JHD) from a biomedical, symptom burden, and total pain palliative care perspective. Methods: This case report was informed by a narrative review of the literature with inclusion of expert opinion from pediatric palliative care, an adult and pediatric neurologist, and a child psychiatrist. Audio-recorded qualitative interview and coauthorship with the pediatric patient’s primary caregiver (his mother). Results: The JHD impacts all domains of child and family function. Significance of Results: Application of the concept of total pain to JHD informs and guides care for this complex, challenging condition.

Original languageEnglish (US)
Pages (from-to)205-207
Number of pages3
JournalJournal of Palliative Care
Volume34
Issue number3
DOIs
StatePublished - Jul 1 2019

Keywords

  • Huntington’s Disease
  • Juvenile Huntington’s Disease
  • palliative care
  • pediatric
  • total pain

ASJC Scopus subject areas

  • Medicine(all)

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