Communicating with parents of children with trisomy 13 or 18 who seek cardiac interventions

Meaghann S Weaver; John Lantos; Kelly Hauschild; James Hammel; Nicole Birge; Annie Janvier

doi:10.1017/S1047951120004023

Communicating with parents of children with trisomy 13 or 18 who seek cardiac interventions

Meaghann S Weaver, John Lantos, Kelly Hauschild, James Hammel, Nicole Birge, Annie Janvier

Research output: Contribution to journal › Article › peer-review

1 Scopus citations

Abstract

This case report shares the story of a family who sought care elsewhere after their daughter was denied cardiac surgery in their home state because she had trisomy 18. This case report recommends case-by-case assessment of cardiac surgical interventions for children with trisomy 13 or 18 as informed by review of goals, assessment of comorbidities, and literature-informed practice. Coordinated care planning and interdisciplinary communication are relevant in cardiac surgical considerations for children with these underlying genetic conditions.

Original language	English (US)
Pages (from-to)	471-475
Number of pages	5
Journal	Cardiology in the Young
Volume	31
Issue number	3
DOIs	https://doi.org/10.1017/S1047951120004023
State	Published - Mar 2021

Keywords

Trisomy 13
cardiology
communication
paediatric palliative
trisomy 18

ASJC Scopus subject areas

Pediatrics, Perinatology, and Child Health
Cardiology and Cardiovascular Medicine

Access to Document

10.1017/S1047951120004023

Cite this

@article{81c0a12d59b6440bb9c0831e2c0b6d6c,

title = "Communicating with parents of children with trisomy 13 or 18 who seek cardiac interventions",

abstract = "This case report shares the story of a family who sought care elsewhere after their daughter was denied cardiac surgery in their home state because she had trisomy 18. This case report recommends case-by-case assessment of cardiac surgical interventions for children with trisomy 13 or 18 as informed by review of goals, assessment of comorbidities, and literature-informed practice. Coordinated care planning and interdisciplinary communication are relevant in cardiac surgical considerations for children with these underlying genetic conditions.",

keywords = "Trisomy 13, cardiology, communication, paediatric palliative, trisomy 18",

author = "Weaver, {Meaghann S} and John Lantos and Kelly Hauschild and James Hammel and Nicole Birge and Annie Janvier",

note = "Publisher Copyright: {\textcopyright} The Author(s), 2020. Published by Cambridge University Press.",

year = "2021",

month = mar,

doi = "10.1017/S1047951120004023",

language = "English (US)",

volume = "31",

pages = "471--475",

journal = "Cardiology in the Young",

issn = "1047-9511",

publisher = "Cambridge University Press",

number = "3",

}

TY - JOUR

T1 - Communicating with parents of children with trisomy 13 or 18 who seek cardiac interventions

AU - Weaver, Meaghann S

AU - Lantos, John

AU - Hauschild, Kelly

AU - Hammel, James

AU - Birge, Nicole

AU - Janvier, Annie

N1 - Publisher Copyright: © The Author(s), 2020. Published by Cambridge University Press.

PY - 2021/3

Y1 - 2021/3

N2 - This case report shares the story of a family who sought care elsewhere after their daughter was denied cardiac surgery in their home state because she had trisomy 18. This case report recommends case-by-case assessment of cardiac surgical interventions for children with trisomy 13 or 18 as informed by review of goals, assessment of comorbidities, and literature-informed practice. Coordinated care planning and interdisciplinary communication are relevant in cardiac surgical considerations for children with these underlying genetic conditions.

AB - This case report shares the story of a family who sought care elsewhere after their daughter was denied cardiac surgery in their home state because she had trisomy 18. This case report recommends case-by-case assessment of cardiac surgical interventions for children with trisomy 13 or 18 as informed by review of goals, assessment of comorbidities, and literature-informed practice. Coordinated care planning and interdisciplinary communication are relevant in cardiac surgical considerations for children with these underlying genetic conditions.

KW - Trisomy 13

KW - cardiology

KW - communication

KW - paediatric palliative

KW - trisomy 18

UR - http://www.scopus.com/inward/record.url?scp=85096385638&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85096385638&partnerID=8YFLogxK

U2 - 10.1017/S1047951120004023

DO - 10.1017/S1047951120004023

M3 - Article

C2 - 33208208

AN - SCOPUS:85096385638

VL - 31

SP - 471

EP - 475

JO - Cardiology in the Young

JF - Cardiology in the Young

SN - 1047-9511

IS - 3

ER -

Communicating with parents of children with trisomy 13 or 18 who seek cardiac interventions

Abstract

Keywords

ASJC Scopus subject areas

Access to Document

Other files and links

Fingerprint

Cite this