Communicating with parents of children with trisomy 13 or 18 who seek cardiac interventions

Meaghann S. Weaver; John Lantos; Kelly Hauschild; James Hammel; Nicole Birge; Annie Janvier

doi:10.1017/S1047951120004023

Communicating with parents of children with trisomy 13 or 18 who seek cardiac interventions

Meaghann S. Weaver, John Lantos, Kelly Hauschild, James Hammel, Nicole Birge, Annie Janvier

Research output: Contribution to journal › Article › peer-review

4 Scopus citations

Abstract

This case report shares the story of a family who sought care elsewhere after their daughter was denied cardiac surgery in their home state because she had trisomy 18. This case report recommends case-by-case assessment of cardiac surgical interventions for children with trisomy 13 or 18 as informed by review of goals, assessment of comorbidities, and literature-informed practice. Coordinated care planning and interdisciplinary communication are relevant in cardiac surgical considerations for children with these underlying genetic conditions.

Original language	English (US)
Pages (from-to)	471-475
Number of pages	5
Journal	Cardiology in the Young
Volume	31
Issue number	3
DOIs	https://doi.org/10.1017/S1047951120004023
State	Published - Mar 2021

Keywords

Trisomy 13
cardiology
communication
paediatric palliative
trisomy 18

ASJC Scopus subject areas

Pediatrics, Perinatology, and Child Health
Cardiology and Cardiovascular Medicine

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10.1017/S1047951120004023

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title = "Communicating with parents of children with trisomy 13 or 18 who seek cardiac interventions",

abstract = "This case report shares the story of a family who sought care elsewhere after their daughter was denied cardiac surgery in their home state because she had trisomy 18. This case report recommends case-by-case assessment of cardiac surgical interventions for children with trisomy 13 or 18 as informed by review of goals, assessment of comorbidities, and literature-informed practice. Coordinated care planning and interdisciplinary communication are relevant in cardiac surgical considerations for children with these underlying genetic conditions.",

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AU - Lantos, John

AU - Hauschild, Kelly

AU - Hammel, James

AU - Birge, Nicole

AU - Janvier, Annie

N1 - Publisher Copyright: © The Author(s), 2020. Published by Cambridge University Press.

PY - 2021/3

Y1 - 2021/3

N2 - This case report shares the story of a family who sought care elsewhere after their daughter was denied cardiac surgery in their home state because she had trisomy 18. This case report recommends case-by-case assessment of cardiac surgical interventions for children with trisomy 13 or 18 as informed by review of goals, assessment of comorbidities, and literature-informed practice. Coordinated care planning and interdisciplinary communication are relevant in cardiac surgical considerations for children with these underlying genetic conditions.

AB - This case report shares the story of a family who sought care elsewhere after their daughter was denied cardiac surgery in their home state because she had trisomy 18. This case report recommends case-by-case assessment of cardiac surgical interventions for children with trisomy 13 or 18 as informed by review of goals, assessment of comorbidities, and literature-informed practice. Coordinated care planning and interdisciplinary communication are relevant in cardiac surgical considerations for children with these underlying genetic conditions.

KW - Trisomy 13

KW - cardiology

KW - communication

KW - paediatric palliative

KW - trisomy 18

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Communicating with parents of children with trisomy 13 or 18 who seek cardiac interventions

Abstract

Keywords

ASJC Scopus subject areas

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