Abstract
This case report shares the story of a family who sought care elsewhere after their daughter was denied cardiac surgery in their home state because she had trisomy 18. This case report recommends case-by-case assessment of cardiac surgical interventions for children with trisomy 13 or 18 as informed by review of goals, assessment of comorbidities, and literature-informed practice. Coordinated care planning and interdisciplinary communication are relevant in cardiac surgical considerations for children with these underlying genetic conditions.
Original language | English (US) |
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Pages (from-to) | 471-475 |
Number of pages | 5 |
Journal | Cardiology in the Young |
Volume | 31 |
Issue number | 3 |
DOIs | |
State | Published - Mar 2021 |
Keywords
- Trisomy 13
- cardiology
- communication
- paediatric palliative
- trisomy 18
ASJC Scopus subject areas
- Pediatrics, Perinatology, and Child Health
- Cardiology and Cardiovascular Medicine