Communicating with parents of children with trisomy 13 or 18 who seek cardiac interventions

Meaghann S. Weaver, John Lantos, Kelly Hauschild, James Hammel, Nicole Birge, Annie Janvier

Research output: Contribution to journalArticlepeer-review

Abstract

This case report shares the story of a family who sought care elsewhere after their daughter was denied cardiac surgery in their home state because she had trisomy 18. This case report recommends case-by-case assessment of cardiac surgical interventions for children with trisomy 13 or 18 as informed by review of goals, assessment of comorbidities, and literature-informed practice. Coordinated care planning and interdisciplinary communication are relevant in cardiac surgical considerations for children with these underlying genetic conditions.

Original languageEnglish (US)
Pages (from-to)471-475
Number of pages5
JournalCardiology in the Young
Volume31
Issue number3
DOIs
StatePublished - Mar 2021
Externally publishedYes

Keywords

  • Trisomy 13
  • cardiology
  • communication
  • paediatric palliative
  • trisomy 18

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Cardiology and Cardiovascular Medicine

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