Communicating with parents of children with trisomy 13 or 18 who seek cardiac interventions

Meaghann S. Weaver; John Lantos; Kelly Hauschild; James Hammel; Nicole Birge; Annie Janvier

doi:10.1017/S1047951120004023

Communicating with parents of children with trisomy 13 or 18 who seek cardiac interventions

Meaghann S. Weaver, John Lantos, Kelly Hauschild, James Hammel, Nicole Birge, Annie Janvier

Research output: Contribution to journal › Article › peer-review

Abstract

This case report shares the story of a family who sought care elsewhere after their daughter was denied cardiac surgery in their home state because she had trisomy 18. This case report recommends case-by-case assessment of cardiac surgical interventions for children with trisomy 13 or 18 as informed by review of goals, assessment of comorbidities, and literature-informed practice. Coordinated care planning and interdisciplinary communication are relevant in cardiac surgical considerations for children with these underlying genetic conditions.

Original language	English (US)
Pages (from-to)	471-475
Number of pages	5
Journal	Cardiology in the Young
Volume	31
Issue number	3
DOIs	https://doi.org/10.1017/S1047951120004023
State	Published - Mar 2021
Externally published	Yes

Keywords

Trisomy 13
cardiology
communication
paediatric palliative
trisomy 18

ASJC Scopus subject areas

Pediatrics, Perinatology, and Child Health
Cardiology and Cardiovascular Medicine

Access to Document

10.1017/S1047951120004023

Cite this

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title = "Communicating with parents of children with trisomy 13 or 18 who seek cardiac interventions",

abstract = "This case report shares the story of a family who sought care elsewhere after their daughter was denied cardiac surgery in their home state because she had trisomy 18. This case report recommends case-by-case assessment of cardiac surgical interventions for children with trisomy 13 or 18 as informed by review of goals, assessment of comorbidities, and literature-informed practice. Coordinated care planning and interdisciplinary communication are relevant in cardiac surgical considerations for children with these underlying genetic conditions.",

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AU - Lantos, John

AU - Hauschild, Kelly

AU - Hammel, James

AU - Birge, Nicole

AU - Janvier, Annie

N1 - Publisher Copyright: © The Author(s), 2020. Published by Cambridge University Press.

PY - 2021/3

Y1 - 2021/3

N2 - This case report shares the story of a family who sought care elsewhere after their daughter was denied cardiac surgery in their home state because she had trisomy 18. This case report recommends case-by-case assessment of cardiac surgical interventions for children with trisomy 13 or 18 as informed by review of goals, assessment of comorbidities, and literature-informed practice. Coordinated care planning and interdisciplinary communication are relevant in cardiac surgical considerations for children with these underlying genetic conditions.

AB - This case report shares the story of a family who sought care elsewhere after their daughter was denied cardiac surgery in their home state because she had trisomy 18. This case report recommends case-by-case assessment of cardiac surgical interventions for children with trisomy 13 or 18 as informed by review of goals, assessment of comorbidities, and literature-informed practice. Coordinated care planning and interdisciplinary communication are relevant in cardiac surgical considerations for children with these underlying genetic conditions.

KW - Trisomy 13

KW - cardiology

KW - communication

KW - paediatric palliative

KW - trisomy 18

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Communicating with parents of children with trisomy 13 or 18 who seek cardiac interventions

Abstract

Keywords

ASJC Scopus subject areas

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