Conceptualizing and measuring family quality of life

Jean Ann Summers, D. J. Poston, A. P. Turnbull, J. Marquis, L. Hoffman, H. Mannan, M. Wang

Research output: Contribution to journalArticle

136 Scopus citations

Abstract

Background: Increasing emphasis on family-centred approaches to services and supports for families of children with disabilities has surfaced the issue of accountability for family outcomes. We present a review of literature about the impacts of children with disabilities on families as a backdrop to proposing family quality of life as a concept that encompasses impacts of disability and one that can be used to assess the impact of supports and services on families. Method: We briefly introduce the Beach Center Family Quality of Life Scale, providing information about its factor structure, reliability and convergent validity. Results: The Beach Center Family Quality of Life Scale contains 25 items assessing family ratings of importance and satisfaction with five domains: Family interaction, Parenting, Emotional well-being, Physical/material well-being and Disability-related supports. Conclusion: We present a framework for utilizing a measure of family quality of life as a long-term outcome in concert with other short-term measures of service outcomes for families.

Original languageEnglish (US)
Pages (from-to)777-783
Number of pages7
JournalJournal of Intellectual Disability Research
Volume49
Issue number10
DOIs
StatePublished - Oct 2005

Keywords

  • Disability
  • Family
  • Measurement
  • Outcomes
  • Quality of life

ASJC Scopus subject areas

  • Rehabilitation
  • Arts and Humanities (miscellaneous)
  • Neurology
  • Clinical Neurology
  • Psychiatry and Mental health

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    Summers, J. A., Poston, D. J., Turnbull, A. P., Marquis, J., Hoffman, L., Mannan, H., & Wang, M. (2005). Conceptualizing and measuring family quality of life. Journal of Intellectual Disability Research, 49(10), 777-783. https://doi.org/10.1111/j.1365-2788.2005.00751.x