Decision-making by family caregivers of elders experiencing dementia

Marsha Lewis; Kenneth Hepburn; Suzanne Narayan; Robin M. Lally; Sheila Corcoran-Perry; Melitta Maddox; Kyla Dropkin; Susan Hasse

doi:10.1177/153331750001500607

Decision-making by family caregivers of elders experiencing dementia

Marsha Lewis, Kenneth Hepburn, Suzanne Narayan, Robin M. Lally, Sheila Corcoran-Perry, Melitta Maddox, Kyla Dropkin, Susan Hasse

Research output: Contribution to journal › Article › peer-review

14 Scopus citations

Abstract

Families provide the majority of care for persons with Alzheimer's disease. Multiple aspects of caregiving, including decision-making, lead to caregiver burden and stress. The purpose of this pilot study was to describe the decision situations faced by caregivers. Nine female spouse caregivers participated in focus groups to solicit the decision situations they faced while caring for their husbands. Some 183 decision situations were grouped into 14 decision-making topics and five other topical categories: physical safety and wellness; cognitive and emotional; relationships; caregiver well-being; and legal. Categories were organized under two themes: decision situations related to self-care and decision situations related to spouse care. The majority of decision situations relate to maintaining the caregiver's well-being. Implications for nursing and further study are discussed.

Original language	English (US)
Pages (from-to)	361-366
Number of pages	6
Journal	American Journal of Alzheimer's Disease and Other Dementias
Volume	15
Issue number	6
DOIs	https://doi.org/10.1177/153331750001500607
State	Published - Nov 2000
Externally published	Yes

ASJC Scopus subject areas

General Neuroscience
Clinical Psychology
Geriatrics and Gerontology
Psychiatry and Mental health

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10.1177/153331750001500607

Cite this

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abstract = "Families provide the majority of care for persons with Alzheimer's disease. Multiple aspects of caregiving, including decision-making, lead to caregiver burden and stress. The purpose of this pilot study was to describe the decision situations faced by caregivers. Nine female spouse caregivers participated in focus groups to solicit the decision situations they faced while caring for their husbands. Some 183 decision situations were grouped into 14 decision-making topics and five other topical categories: physical safety and wellness; cognitive and emotional; relationships; caregiver well-being; and legal. Categories were organized under two themes: decision situations related to self-care and decision situations related to spouse care. The majority of decision situations relate to maintaining the caregiver's well-being. Implications for nursing and further study are discussed.",

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AU - Lewis, Marsha

AU - Hepburn, Kenneth

AU - Narayan, Suzanne

AU - Lally, Robin M.

AU - Corcoran-Perry, Sheila

AU - Maddox, Melitta

AU - Dropkin, Kyla

AU - Hasse, Susan

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AB - Families provide the majority of care for persons with Alzheimer's disease. Multiple aspects of caregiving, including decision-making, lead to caregiver burden and stress. The purpose of this pilot study was to describe the decision situations faced by caregivers. Nine female spouse caregivers participated in focus groups to solicit the decision situations they faced while caring for their husbands. Some 183 decision situations were grouped into 14 decision-making topics and five other topical categories: physical safety and wellness; cognitive and emotional; relationships; caregiver well-being; and legal. Categories were organized under two themes: decision situations related to self-care and decision situations related to spouse care. The majority of decision situations relate to maintaining the caregiver's well-being. Implications for nursing and further study are discussed.

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Decision-making by family caregivers of elders experiencing dementia

Abstract

ASJC Scopus subject areas

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