Experiences and needs of African American children and adolescents in supportive care roles for a relative with breast cancer

Robin M. Lally, Jennifer Hydeman, Catherine Brooks, Halima Akter, Megan T. Yoerg

Research output: Contribution to journalArticlepeer-review

Abstract

PURPOSE: To explore the experiences and needs of African American (AA) children and adolescents who were identified by a cancer survivor in their family as providing substantial supportive care during diagnosis and treatment. PARTICIPANTS & SETTING: 5 AA young adults who provided care and support to a family member with cancer when they were aged 7-19 years and 4 cancer survivors from a northeastern U.S. city. METHODOLOGIC APPROACH: Focus groups and interviews were conducted, recorded, transcribed, and analyzed using content analysis until thematic saturation was reached. FINDINGS: Themes focused on AA young supporters' lack of cancer-related information, reduced ability to communicate needs, and challenged views of themselves, relationships, faith, and the future at the time that they provided support. IMPLICATIONS FOR NURSING: Nurses can support AA children and adolescents in caregiving roles by assessing their needs and providing information on diagnosis and treatment. In addition, nurses can conduct research on culturally adapted interventions that can better support AA children and adolescents caring for a parent or grandparent with cancer.

Original languageEnglish (US)
Pages (from-to)165-176
Number of pages12
JournalOncology nursing forum
Volume47
Issue number2
DOIs
StatePublished - Mar 2020

Keywords

  • Adolescents
  • African Americans
  • Breast cancer
  • Family caregivers
  • Parental cancer

ASJC Scopus subject areas

  • Oncology(nursing)

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