Family caregiver-reported outcomes regarding decision-making for left ventricular assist device implantation

Barbara Birriel, Windy Alonso, Lisa A. Kitko, Judith E. Hupcey

Research output: Contribution to journalArticle

Abstract

Background: Family caregivers (FCGs) often participate in the decision for their loved one to receive a left ventricular assist device (LVAD). Little is known about the contribution of FCGs to this complex decision. Objectives: To investigate family caregiver-reported outcomes related to decision-making for LVAD implantation and their experiences post-implantation. Methods: Descriptive thematic analysis was used to analyze longitudinal data. Thematic saturation was achieved. Results: Three key themes emerged from the data. The main theme in the pre-implantation period was: Not a decision. The two themes in the post-implantation period were: More satisfaction than regret and Unanticipated situational change. Conclusions: Family caregiver-reported outcomes inform clinical practice and future research. FCGs of LVAD recipients did not see viable alternatives to LVAD implantation, were generally satisfied with post-implantation outcomes, and experienced unexpected life changes in the post-implantation period despite feeling prepared preoperatively. Education of both LVAD recipients and their FCGs must be optimized.

Original languageEnglish (US)
Pages (from-to)308-312
Number of pages5
JournalHeart and Lung
Volume48
Issue number4
DOIs
StatePublished - Jul 1 2019

Keywords

  • Decision making
  • Family caregivers
  • Heart failure
  • Ventricle assist device (ventricular assist device)

ASJC Scopus subject areas

  • Pulmonary and Respiratory Medicine
  • Critical Care and Intensive Care Medicine
  • Cardiology and Cardiovascular Medicine

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