Intergenerational caregivers of parents with end-stage heart failure

Windy Williams Alonso, Lisa A. Kitko, Judith E. Hupcey

Research output: Contribution to journalArticle

2 Scopus citations

Abstract

Purpose: The purpose of this study was to longitudinally explore the experiences of young adult, adult, and older adult intergenerational caregivers caring for a parent with end-stage heart failure (HF). Design: This study was a secondary analysis of qualitative data collected during a longitudinal study that sought to determine the palliative care needs of individuals with end-stage HF and their family caregivers. Methods: Longitudinal interviews from 23 young adult, adult, and older adult children who were caring for a parent with end-stage HF were selected for thematic analysis. Researchers individually analyzed the interviews and then, as a group, came to a consensus about themes. Findings: Five major themes were identified: caregiver resources, role management, caregiver-parent relationships, filial responsibility, and personal benefits and challenges. Conclusions: These intergenerational caregivers struggled to balance their busy lives and caregiving roles. However, most felt supported by other family members or external resources. Longitudinal findings support a need for improved employer-based support for intergenerational caregivers and special attention to young carers in research and practice. Recognition of and advocacy for intergenerational caregivers providing care for a chronically ill parent is needed.

Original languageEnglish (US)
Pages (from-to)413-435
Number of pages23
JournalResearch and Theory for Nursing Practice
Volume32
Issue number4
DOIs
StatePublished - 2018

Keywords

  • Family caregiving
  • Heart failure
  • Heart failure caregivers
  • Intergenerational caregivers

ASJC Scopus subject areas

  • Research and Theory

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