TY - JOUR
T1 - Pain medication management processes used by oncology outpatients and family caregivers part II
T2 - Home and lifestyle contexts
AU - Schumacher, Karen L.
AU - Plano Clark, Vicki L.
AU - West, Claudia M.
AU - Dodd, Marylin J.
AU - Rabow, Michael W.
AU - Miaskowski, Christine
N1 - Publisher Copyright:
© 2014 American Academy of Hospice and Palliative Medicine.
PY - 2014/11/1
Y1 - 2014/11/1
N2 - Context. Despite the increasing complexity of medication regimens for persistent cancer pain, little is known about how oncology outpatients and their family caregivers manage pain medications at home.Objectives. To describe the day-to-day management of pain medications from the perspectives of oncology outpatients and their family caregivers who participated in a randomized clinical trial of a psychoeducational intervention called the Pro-Self© Plus Pain Control Program. In this article, we focus on pain medication management in the context of highly individualized home environments and lifestyles.Methods. This qualitative study was conducted as part of a randomized clinical trial, in which an embedded mixed methods research design was used. Audio-recorded dialogue among patients, family caregivers, and intervention nurses was analyzed using qualitative research methods.Results. Home and lifestyle contexts for managing pain medications included highly individualized home environments, work and recreational activities, personal routines, and family characteristics. Pain medication management processes particularly relevant in these contexts included understanding, organizing, storing, scheduling, remembering, and taking the medications. With the exception of their interactions with the intervention nurses, most study participants had little involvement with clinicians as they worked through these processes.Conclusion. Pain medication management is an ongoing multidimensional process, each step of which has to be mastered by patients and their family caregivers when cancer treatment and supportive care are provided on an outpatient basis. Realistic patient- and family-centered skill-building interventions are needed to achieve effective and safe pain medication management in the contexts of individual home environments and lifestyles.
AB - Context. Despite the increasing complexity of medication regimens for persistent cancer pain, little is known about how oncology outpatients and their family caregivers manage pain medications at home.Objectives. To describe the day-to-day management of pain medications from the perspectives of oncology outpatients and their family caregivers who participated in a randomized clinical trial of a psychoeducational intervention called the Pro-Self© Plus Pain Control Program. In this article, we focus on pain medication management in the context of highly individualized home environments and lifestyles.Methods. This qualitative study was conducted as part of a randomized clinical trial, in which an embedded mixed methods research design was used. Audio-recorded dialogue among patients, family caregivers, and intervention nurses was analyzed using qualitative research methods.Results. Home and lifestyle contexts for managing pain medications included highly individualized home environments, work and recreational activities, personal routines, and family characteristics. Pain medication management processes particularly relevant in these contexts included understanding, organizing, storing, scheduling, remembering, and taking the medications. With the exception of their interactions with the intervention nurses, most study participants had little involvement with clinicians as they worked through these processes.Conclusion. Pain medication management is an ongoing multidimensional process, each step of which has to be mastered by patients and their family caregivers when cancer treatment and supportive care are provided on an outpatient basis. Realistic patient- and family-centered skill-building interventions are needed to achieve effective and safe pain medication management in the contexts of individual home environments and lifestyles.
KW - Cancer pain management
KW - analgesics
KW - family caregivers
KW - home
KW - lifestyle
KW - medication management
KW - medications
KW - qualitative research
KW - randomized clinical trial
KW - self-care
KW - self-management
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U2 - 10.1016/j.jpainsymman.2013.12.247
DO - 10.1016/j.jpainsymman.2013.12.247
M3 - Article
C2 - 24709364
AN - SCOPUS:84911360676
SN - 0885-3924
VL - 48
SP - 784
EP - 796
JO - Journal of Pain and Symptom Management
JF - Journal of Pain and Symptom Management
IS - 5
ER -