Patient activation with knowledge, self-management and confidence in chronic kidney disease

Michelle L. Johnson, Lani Zimmerman, Janet L. Welch, Melody Hertzog, Bunny Pozehl, Troy Plumb

Research output: Contribution to journalArticlepeer-review

42 Scopus citations


SUMMARY: Background: Chronic kidney disease is a growing health problem on a global scale. The increasing prevalence of chronic kidney disease presents an urgent need to better understand the knowledge, confidence and engagement in self-managing the disease. Objectives: This study examined group differences in patient activation and health-related quality of life, knowledge, self-management and confidence with managing chronic disease across all five stages of chronic kidney disease. Design: The study employed a descriptive correlational design. Settings: Participants were recruited from five primary care, three nephrology clinics and one dialysis centre in two Midwestern cities in the United States. Participants: The convenience sample included 85 adults with hypertension, diabetes mellitus and chronic kidney disease, including kidney failure, who spoke English. Measurements: Seven measurements were used to collect data via telephone interviews with participants not receiving haemodialysis, and face-to-face interviews with those receiving haemodialysis at the beginning of their treatment session. Results: Analyses indicated that half the participants were female (50.58%), the mean age was 63.21 years (SD=13.11), and participants with chronic kidney disease stage 3 were the most activated. Post hoc differences were significant in patient activation and blood pressure self-management and anxiety across chronic kidney disease stages, excluding stage 5. Conclusion: Engaging patients in the self-management of their health care and enhancing patients' ability to self-manage their blood pressure may work to preserve kidney health. Healthcare providers should collaborate with patients to develop strategies that will maintain patients' health-related quality of life, like reducing anxiety as kidney disease progress.

Original languageEnglish (US)
Pages (from-to)15-22
Number of pages8
JournalJournal of Renal Care
Issue number1
StatePublished - Mar 1 2016


  • Chronic kidney disease
  • Health-related quality of life
  • Patient activation
  • Self-management

ASJC Scopus subject areas

  • Nephrology
  • Advanced and Specialized Nursing


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