@article{fc1ab2d909094acd88abcae102ac04c9,
title = "Patient Goals for Living with Rheumatoid Arthritis: A Qualitative Study",
abstract = "Rheumatoid arthritis is highly individualized in terms of its flare ups and periods of remission. Each patient{\textquoteright}s unique experience requires a high level of personalization in terms of treatment making it necessary to understand what their goals for living are. This study explores patient perceptions on how the burden of RA shapes patients{\textquoteright} goals for living and their preferences for symptom and side-effect management within the United States. Fifteen patients diagnosed with RA with varying lengths of diagnosis were interviewed. A thematic analysis was conducted to construct a conceptual framework. Emerging themes identified disease burdens as: (1) inability to perform essential needs, (2) negative feelings about disease, and (3) its influence on relationships. These burdens shaped desired goals for living which guided the symptom and side-effect priorities the patient wanted managed. Practitioners should consider patient goals and preferences in conjunction with disease progression when engaging in treatment decisions.",
keywords = "clinical management, patient-reported goals, rheumatoid arthritis, symptom and side-effect preferences",
author = "Cozad, {Melanie J.} and Lindley, {Lisa C.} and Kaitlyn Crosby and Noor Alshareef and Kennedy, {Ann Blair} and Gulzar Merchant and Pam Evans and Horner, {Ronnie D.}",
note = "Funding Information: The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This study acknowledges the grateful support of Ms. Debbie Gestring and Ms. Jessica Richards and the rest of the staff at Rheumatology Specialists, Prisma Health Upstate for their support. Additionally, our team acknowledges the time and effort of the patient experts at the University of South Carolina Patient Engagement Studio. Grant funding support was provided by Pfizer Grants for Independent Learning and Change Medication Optimization for Rheumatoid Arthitis. Funding Information: The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This study acknowledges the grateful support of Ms. Debbie Gestring and Ms. Jessica Richards and the rest of the staff at Rheumatology Specialists, Prisma Health Upstate for their support. Additionally, our team acknowledges the time and effort of the patient experts at the University of South Carolina Patient Engagement Studio. Grant funding support was provided by Pfizer Grants for Independent Learning and Change Medication Optimization for Rheumatoid Arthitis. Publisher Copyright: {\textcopyright} The Author(s) 2022.",
year = "2023",
month = jan,
doi = "10.1177/10547738221075784",
language = "English (US)",
volume = "32",
pages = "40--48",
journal = "Clinical Nursing Research",
issn = "1054-7738",
publisher = "SAGE Publications Inc.",
number = "1",
}