Technical report: Ethical and policy issues in genetic testing and screening of children

Laine Friedman Ross, Howard M. Saal, Karen L. David, Rebecca R. Anderson

Research output: Contribution to journalArticle

255 Scopus citations

Abstract

The genetic testing and genetic screening of children are commonplace. Decisions about whether to offer genetic testing and screening should be driven by the best interest of the child. The growing literature on the psychosocial and clinical effects of such testing and screening can help inform best practices. This technical report provides ethical justification and empirical data in support of the proposed policy recommendations regarding such practices in a myriad of settings.

Original languageEnglish (US)
Pages (from-to)234-245
Number of pages12
JournalGenetics in Medicine
Volume15
Issue number3
DOIs
StatePublished - Mar 2013

Keywords

  • Carrier identification
  • Disclosure
  • Genetic screening
  • Genetic testing
  • Newborn screening
  • predictive testing

ASJC Scopus subject areas

  • Genetics(clinical)

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