Technical report: Ethical and policy issues in genetic testing and screening of children

Laine Friedman Ross; Howard M. Saal; Karen L. David; Rebecca R. Anderson

doi:10.1038/gim.2012.176

Technical report: Ethical and policy issues in genetic testing and screening of children

Laine Friedman Ross, Howard M. Saal, Karen L. David, Rebecca R. Anderson

Research output: Contribution to journal › Article › peer-review

268 Scopus citations

Abstract

The genetic testing and genetic screening of children are commonplace. Decisions about whether to offer genetic testing and screening should be driven by the best interest of the child. The growing literature on the psychosocial and clinical effects of such testing and screening can help inform best practices. This technical report provides ethical justification and empirical data in support of the proposed policy recommendations regarding such practices in a myriad of settings.

Original language	English (US)
Pages (from-to)	234-245
Number of pages	12
Journal	Genetics in Medicine
Volume	15
Issue number	3
DOIs	https://doi.org/10.1038/gim.2012.176
State	Published - Mar 2013

Keywords

Carrier identification
Disclosure
Genetic screening
Genetic testing
Newborn screening
predictive testing

ASJC Scopus subject areas

Genetics(clinical)

Access to Document

10.1038/gim.2012.176

Fingerprint Dive into the research topics of 'Technical report: Ethical and policy issues in genetic testing and screening of children'. Together they form a unique fingerprint.

Cite this

@article{98ae997506c34bb79722ce374d259a5b,

title = "Technical report: Ethical and policy issues in genetic testing and screening of children",

abstract = "The genetic testing and genetic screening of children are commonplace. Decisions about whether to offer genetic testing and screening should be driven by the best interest of the child. The growing literature on the psychosocial and clinical effects of such testing and screening can help inform best practices. This technical report provides ethical justification and empirical data in support of the proposed policy recommendations regarding such practices in a myriad of settings.",

keywords = "Carrier identification, Disclosure, Genetic screening, Genetic testing, Newborn screening, predictive testing",

author = "Ross, {Laine Friedman} and Saal, {Howard M.} and David, {Karen L.} and Anderson, {Rebecca R.}",

year = "2013",

month = mar,

doi = "10.1038/gim.2012.176",

language = "English (US)",

volume = "15",

pages = "234--245",

journal = "Genetics in Medicine",

issn = "1098-3600",

publisher = "Lippincott Williams and Wilkins",

number = "3",

}

TY - JOUR

T1 - Technical report

T2 - Ethical and policy issues in genetic testing and screening of children

AU - Ross, Laine Friedman

AU - Saal, Howard M.

AU - David, Karen L.

AU - Anderson, Rebecca R.

PY - 2013/3

Y1 - 2013/3

N2 - The genetic testing and genetic screening of children are commonplace. Decisions about whether to offer genetic testing and screening should be driven by the best interest of the child. The growing literature on the psychosocial and clinical effects of such testing and screening can help inform best practices. This technical report provides ethical justification and empirical data in support of the proposed policy recommendations regarding such practices in a myriad of settings.

AB - The genetic testing and genetic screening of children are commonplace. Decisions about whether to offer genetic testing and screening should be driven by the best interest of the child. The growing literature on the psychosocial and clinical effects of such testing and screening can help inform best practices. This technical report provides ethical justification and empirical data in support of the proposed policy recommendations regarding such practices in a myriad of settings.

KW - Carrier identification

KW - Disclosure

KW - Genetic screening

KW - Genetic testing

KW - Newborn screening

KW - predictive testing

UR - http://www.scopus.com/inward/record.url?scp=84875178404&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84875178404&partnerID=8YFLogxK

U2 - 10.1038/gim.2012.176

DO - 10.1038/gim.2012.176

M3 - Article

C2 - 23429433

AN - SCOPUS:84875178404

VL - 15

SP - 234

EP - 245

JO - Genetics in Medicine

JF - Genetics in Medicine

SN - 1098-3600

IS - 3

ER -

Technical report: Ethical and policy issues in genetic testing and screening of children

Abstract

Keywords

ASJC Scopus subject areas

Access to Document

Other files and links

Cite this