Technical report: Ethical and policy issues in genetic testing and screening of children

Laine Friedman Ross; Howard M. Saal; Karen L. David; Rebecca R. Anderson

doi:10.1038/gim.2012.176

Technical report: Ethical and policy issues in genetic testing and screening of children

Laine Friedman Ross, Howard M. Saal, Karen L. David, Rebecca R. Anderson

Research output: Contribution to journal › Article › peer-review

354 Scopus citations

Abstract

The genetic testing and genetic screening of children are commonplace. Decisions about whether to offer genetic testing and screening should be driven by the best interest of the child. The growing literature on the psychosocial and clinical effects of such testing and screening can help inform best practices. This technical report provides ethical justification and empirical data in support of the proposed policy recommendations regarding such practices in a myriad of settings.

Original language	English (US)
Pages (from-to)	234-245
Number of pages	12
Journal	Genetics in Medicine
Volume	15
Issue number	3
DOIs	https://doi.org/10.1038/gim.2012.176
State	Published - Mar 2013

Keywords

Carrier identification
Disclosure
Genetic screening
Genetic testing
Newborn screening
predictive testing

ASJC Scopus subject areas

Genetics(clinical)

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10.1038/gim.2012.176

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Technical report: Ethical and policy issues in genetic testing and screening of children

Abstract

Keywords

ASJC Scopus subject areas

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