Il vissuto esperienziale riferito alla qualità di vita nei caregiver di persone con malattia d'Alzheimer che vivono nel Lazio ed in Sardegna: Uno studio fenomenologico comparativo

Translated title of the contribution: The experiences referred to the quality of life in caregivers of patients with Alzheimer's disease living in Lazio and Sardinia: A comparative phenomenological study

Carlo Talucci, Ercole Vellone, Giovanni Piras, Marlene Z. Cohen, Rosaria Alvaro

Research output: Contribution to journalArticle

2 Scopus citations

Abstract

The aim of this study was to describe and compare the meaning of quality of life (QOL) for caregivers of patients with Alzheimer's Disease living in Lazio and Sardinia region and to identify factors worsening and improving caregiver's QOL in the two contexts. A hermeneutic phenomenological design was used to study 73 informal caregivers. Emerged themes related to the meaning of QOL were: freedom, independence, having time for themselves; serenity, tranquility; general wellbeing and good health; good financial status; unity and cooperation in the family. Themes related to factors worsening QOL were: worries about the future and illness progression; stress; fear about the future: for the care needed and the illness progression; continuous care, not having time for themselves. Factor improving QOL were: patients' good health; formal and informal help in caregiving; independence from the patient; help and support from family; reward and satisfaction for the delivered care; more free time; more public sensitization on AD. Similarities and differences were found between the two regions and were discussed as well.

Translated title of the contributionThe experiences referred to the quality of life in caregivers of patients with Alzheimer's disease living in Lazio and Sardinia: A comparative phenomenological study
Original languageItalian
Pages (from-to)126-140
Number of pages15
JournalSalute e Societa
Issue number3
StatePublished - 2013

Keywords

  • Alzheimer's Disease
  • Informal caregivers
  • Interview
  • Nursing
  • Phenomenological research
  • Quality of life

ASJC Scopus subject areas

  • Health(social science)
  • Health Policy

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