The National Data Bank for rheumatic diseases: A multi-registry rheumatic disease data bank

Frederick Wolfe, Kaleb Michaud

Research output: Contribution to journalReview article

63 Scopus citations

Abstract

The National Data Bank (NDB) for rheumatic diseases is a patient-based multi-disease, multi-purpose rheumatic disease registry that has been used primarily to study patients with RA, SLE, FM and OA. It enrols patients from the community, follows up with questionnaires and validates key patient data using medical records. Rheumatologist-written programs make NDB data immediately available to analysts. The NDB has been used to develop and validate diagnostic criteria, develop new questionnaires, describe illness and comorbid disease, assesses disease outcomes and the effect of therapeutic interventions, and measure costs and cost-effectiveness.

Original languageEnglish (US)
Pages (from-to)16-24
Number of pages9
JournalRheumatology
Volume50
Issue number1
DOIs
StatePublished - Jan 2011

Keywords

  • Data Bank
  • NDB
  • National Data Bank for rheumatic diseases
  • Registry

ASJC Scopus subject areas

  • Rheumatology
  • Pharmacology (medical)

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