TY - JOUR
T1 - The reliability of a self-reported measure of disease, impairment, and function in persons with spinal cord dysfunction
AU - Hoenig, Helen
AU - McIntyre, Lauren
AU - Sloane, Richard
AU - Branch, Laurence G.
AU - Truncali, Andrea
AU - Horner, Ronnie D.
N1 - Funding Information:
From the Durham Veterans Administration Medical Center and Duke University Medical Center, Durham, NC (Dr. Hoenig, Dr. McIntyre, Mr. Sloane, Dr. Branch, Dr. Homer); and the New York University School of Medicine, New York, NY (Ms. Truncali). Submitted for publication March 3, 1997. Accepted in revised form July 23, 1997. Supported in part by the National Institutes of Health, National Institute on Aging, Claude D. Pepper Older Americans Independence Center, grant 5 P60 AG 11268, and by grants from the Paralyzed Veterans of America and the Veterans Health Administration, Health Services Research and Development Service. No commercial party having a direct financial interest in the results of the research supporting this article has or will confer a benefit upon the authors or ~pon any organization with which the authors are associated. Reprint requests to Helen Hoenig, MD, Physical Medicine and Rehabilitation Service (117), 508 Fulton Street, Durham VAMC, Durham, NC 27705. @ 1998 by the American Congress of Rehabilitation Medicine and the American Academy of Physical Medicine and Rehabilitation 0003-9993/98/7904-4411 $3.00/0
Funding Information:
The VA SCD Registry Project was jointly funded by the Paralyzed Veterans of America (PVA) and the Veterans Health Administration (VHA). The SCD Registry is composed of local (hospital-based) registries, which gather case information and clinical data that are compiled into a nationwide data base. The major purpose of the local registries is to improve coordination of clinical care; the purposes of the SCD National Data Base are to provide a comprehensive listing of SCD veterans who use the VHA and to compile data to conduct national program planning and assessment.
PY - 1998/4
Y1 - 1998/4
N2 - Objective: To develop a self-report instrument that would provide information about the different levels of the disable-merit process, and that (1) was suitable for persons with spinal cord disease (SCD), (2) could be completed quickly, (3) could be mailed, (4) had acceptable reliability, and (5) would be clinically useful. Study Design: Test-retest using a convenience sample. Methods: Review of the literature and an expert panel were used to develop the instrument. It was mailed to 49,458 individuals in June 1995 and a second mailing was done in August 1995. A subset of 725 individuals who responded to both mailings was used to examine the instrument's test-retest reliability. Results: The instrument has a 4th grade reading level and has questions on causal disease, disease severity, impairment, activities of daily living (including a self-reported version of the Functional Independence Measure, the SRFM), and resource utilization. Individual item test-retest reliability was high for a mailed questionnaire; all kappa coefficients were near or above .60 and most were over .70. Intraclass correlation coefficient for the SRFM was .90 and internal consistency (Chronbach's alpha) was .96. Conclusion: This instrument provides a new, rapid way to obtain information relative to the differing levels of the disablement process.
AB - Objective: To develop a self-report instrument that would provide information about the different levels of the disable-merit process, and that (1) was suitable for persons with spinal cord disease (SCD), (2) could be completed quickly, (3) could be mailed, (4) had acceptable reliability, and (5) would be clinically useful. Study Design: Test-retest using a convenience sample. Methods: Review of the literature and an expert panel were used to develop the instrument. It was mailed to 49,458 individuals in June 1995 and a second mailing was done in August 1995. A subset of 725 individuals who responded to both mailings was used to examine the instrument's test-retest reliability. Results: The instrument has a 4th grade reading level and has questions on causal disease, disease severity, impairment, activities of daily living (including a self-reported version of the Functional Independence Measure, the SRFM), and resource utilization. Individual item test-retest reliability was high for a mailed questionnaire; all kappa coefficients were near or above .60 and most were over .70. Intraclass correlation coefficient for the SRFM was .90 and internal consistency (Chronbach's alpha) was .96. Conclusion: This instrument provides a new, rapid way to obtain information relative to the differing levels of the disablement process.
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U2 - 10.1016/S0003-9993(98)90137-X
DO - 10.1016/S0003-9993(98)90137-X
M3 - Article
C2 - 9552102
AN - SCOPUS:0031949276
SN - 0003-9993
VL - 79
SP - 378
EP - 387
JO - Archives of Physical Medicine and Rehabilitation
JF - Archives of Physical Medicine and Rehabilitation
IS - 4
ER -