Toward a new model of childhood asthma care: community needs assessment in an underserved urban population

Hana Niebur, Aislinn Rookwood, Bibhusha Karki, Chad Abresch

Research output: Contribution to journalArticlepeer-review


Objectives: The objective of this study was to utilize a community-engaged research approach to better understand gaps and opportunities for improving asthma care from the perspectives of patients, caregivers, community organization representatives, and healthcare providers in a predominantly minority community. Methods: Forty-one participants from four groups (patients, caregivers, community organization representatives, healthcare providers) participated in interviews or focus groups. A phenomenological approach to this qualitative research allowed the research team to better understand the lived experiences of families seeking asthma care in this community. Results: Five gaps and five corresponding opportunities were identified. The gaps identified were unequal healthcare resource distribution; underrepresentation of health professionals from diverse backgrounds; experiences of environmental racism; mistrust, bias, and discrimination in healthcare encounters; and systemic marginalization of communities. The opportunities identified include increasing healthcare infrastructure and accessibility; increasing racially, culturally, and linguistically congruent healthcare; implementing equitable improvements to the built environment; building relationships with communities and individuals; and acknowledging communities’ strengths and resilience. Conclusion: This study identified systemic gaps to asthma care that are of prominent concern to the community.

Original languageEnglish (US)
JournalJournal of Asthma
StateAccepted/In press - 2023
Externally publishedYes


  • Asthma
  • childhood
  • minority health
  • needs assessment
  • pediatric

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Immunology and Allergy
  • Pulmonary and Respiratory Medicine


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