TY - JOUR
T1 - Variance in Autism Prevalence
T2 - Links With State-Level Autism Resources
AU - Kester, Johanna S.
AU - Hill, Trenesha
AU - Thompson, Lauren
AU - Black, Corey L.
AU - Coriano, Veronica L.
AU - Bruton, Julia
AU - Baker, Courtney N.
N1 - Publisher Copyright:
© Hammill Institute on Disabilities 2023.
PY - 2024/9
Y1 - 2024/9
N2 - The prevalence of autism spectrum disorder (ASD) has varied over time and across the United States. This variability is likely related to external factors, such as regional differences in ASD-related resources. The study reported on here examined the links between ASD prevalence as measured by Individuals with Disabilities Education Act (IDEA) Part B child count data and four aspects of state infrastructure (health care and insurance policies, clinical resources, research infrastructure, and awareness-raising individuals/organizations). This study also investigated whether these constructs varied by geographical region. The data for this study were abstracted from publicly available databases. Information on state infrastructure was gathered from high-quality reports, resource guides, certificant registries, and databases. More comprehensive ASD-relevant insurance and health care policies, more clinical resources, and greater research infrastructure were associated with higher ASD state prevalence rates as measured by the IDEA Part B child count data. Prevalence of ASD was higher in eastern U.S. states compared with southern U.S. states, but state-level ASD resources did not statistically significantly differ across geographic regions. Implications for research, practice, and policy are discussed.
AB - The prevalence of autism spectrum disorder (ASD) has varied over time and across the United States. This variability is likely related to external factors, such as regional differences in ASD-related resources. The study reported on here examined the links between ASD prevalence as measured by Individuals with Disabilities Education Act (IDEA) Part B child count data and four aspects of state infrastructure (health care and insurance policies, clinical resources, research infrastructure, and awareness-raising individuals/organizations). This study also investigated whether these constructs varied by geographical region. The data for this study were abstracted from publicly available databases. Information on state infrastructure was gathered from high-quality reports, resource guides, certificant registries, and databases. More comprehensive ASD-relevant insurance and health care policies, more clinical resources, and greater research infrastructure were associated with higher ASD state prevalence rates as measured by the IDEA Part B child count data. Prevalence of ASD was higher in eastern U.S. states compared with southern U.S. states, but state-level ASD resources did not statistically significantly differ across geographic regions. Implications for research, practice, and policy are discussed.
KW - IDEA Part B child count data
KW - autism
KW - prevalence
KW - state-level resources
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U2 - 10.1177/10442073231156940
DO - 10.1177/10442073231156940
M3 - Article
AN - SCOPUS:85150415925
SN - 1044-2073
VL - 35
SP - 75
EP - 83
JO - Journal of Disability Policy Studies
JF - Journal of Disability Policy Studies
IS - 2
ER -